Community Support
Navigating the world of Ehlers-Danlos Syndrome can often feel isolating, but you’re not alone on this journey. Our Community Support at EDS Education and Empowerment Endeavors, Inc. is here to embrace and uplift you. I’ve learned firsthand how invaluable it is to connect with others who truly understand the daily challenges EDS brings.
This is why I invite you to be part of a thriving community committed to sharing experiences and insights. Together, we foster a network where encouragement thrives, and empowerment is just a conversation away. Whether you're sharing your own story or tuning into others, this support system reminds us all of strength in numbers. Come join a community where your voice is heard, your challenges understood, and your journey supported. Together, we create a space for healing, learning, and, most importantly, belonging.
Patient support group links
EDS Awareness Directory of Local Support Groups https://www.chronicpainpartners.com/
Inspire: Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders https://www.inspire.com/groups/eds-and-hsd/
The Mighty https://themighty.com/topic/ehlers-danlos-syndrome/groups (there are many subgroup topics within this forum)
Patients Like Me https://www.patientslikeme.com/conditions/ehlers-danlos-syndrome/overview
Oh, TWIST https://ohtwist.com/eds-resources/finding-support
The Pain Community https://paincommunity.org/forums/topic/ehlers-danlos-syndrome-2/
Rare Connect https://www.rareconnect.org/en/community/ehlers-danlos-syndrome
Contact Me
Office location
Nicholson, Georgia, 30683Send us an email
[email protected]