EDS Education and Empowerment Endeavors, Non-profit, Nicholson, GA

Mistakes people make in applying for disability

1. Waiting too long

I have seen it happen to people. Multiple “go fund me” efforts over several years. Each time needing help to pay bills because of disability makes them lose their jobs.

There are several …

New Research on hEDS… not just genetic

hEDS is not “just” genetic.

New research explains why it seems progressive even if our genes do not change. Don’t usually post a link in a blog, but this explains it so well!

https://zebras.substack.com/cp/175736593

Why the current medical system fails those with hEDS

Why the current medical system fails those with hEDS

It has been referred to as the “diagnostic odyssey.” It can often take decades to get a diagnosis, with patients getting many diagnoses prior to an hEDS diagnosis due to the multisystemic involvement. There …

Does bracing cause atrophy? It might actually reverse it!

Does bracing cause atrophy in hEDS patients? Why I think, in many cases, it can actually prevent atrophy and even reverse it! This has come up in patient support groups, so I wanted to write a post about it.

I have a complete anterior cruciate rupture in my …

Is EDS progressive?

Is Hypermobile EDS progressive?

I would say the answer is yes, and no, and there is a lot of debate about this.

Genetics:

From a genetic standpoint, many argue that it is not progressive, and as far as the genetic codes are concerned, that is true. Our defective …

Link between EDS and Autism

Did you know there is a link between EDS and Autism?

I just got a diagnosis of Level 1 Autism at the age of 52.

Here is a study showing the link:

Autism in the context of joint hypermobility, hypermobility spectrum disorders, and Ehlers-Danlos syndromes: A …

Understanding Regenerative Treatments for EDS

Posted on July 03, 2025

Envision a day when Ehlers-Danlos Syndrome isn’t just a list of challenges but a gateway to new opportunities for health and wellbeing. For those navigating the physical and emotional landscape of EDS, the journey can be filled with …

The Importance of Early Diagnosis in EDS

Posted on June 30, 2025

Understanding your health, especially the intricacies of genetic conditions like Ehlers-Danlos Syndrome (EDS), can significantly improve your quality of life. While living with EDS presents unique challenges, insight into the condition …

Prolotherapy: A Natural Solution for Chronic Pain

Posted on June 01, 2025

Living with chronic pain can be a relentless and exhausting experience. Many individuals search for effective, long-term solutions to manage their discomfort and regain control of their lives. Prolotherapy, an innovative treatment method, …

Alternatives to Surgical Treatment

Explore non-invasive and regenerative treatment options that can enhance mobility, reduce pain, and improve the quality of life for individuals with EDS. We are committed to providing educational resources and support to help you make informed decisions and find alternatives to surgery that work for you.

Explore the Treatments

Essential Information on EDS

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Connecting With the EDS Community

EDS Complications and Surgery Considerations Resources

Regenerative Treatments and EDS Researches

Alternatives to Surgical Treatment

Ways to Get Involved

Orthopedic Considerations and Surgical Outcomes in Ehlers–Danlos syndromes

Ehlers-Danlos Syndrome in Orthopaedics Etiology, Diagnosis, and Treatment

Orthopaedic Management of the Ehlers-Danlos Syndromes Article

Surgical Recommendations in Hypermobile Ehlers-Danlos Syndrome

Symptom and Joint Mobility Progression in the Joint Hypermobility Syndrome

Treatment of Joint Hypermobility Syndrome, Including Ehlers-Danlos Syndrome, with Hackett-Hemwall Prolotherapy

The Efficacy of Dextrose Prolotherapy Over Placebo for Temporomandibular Joint Hypermobility: A Systematic Review and Meta-analysis

Out of Place: An Osteopathic Approach to Recurrent Shoulder Dislocations in an Ehlers Danlos Patient

Prolotherapy for the Patients With Chronic Musculoskeletal Pain: Systematic Review and Meta-analysis

Case Series of Ultrasound-guided Platelet-rich Plasma Injections for Sacroiliac Joint Dysfunction

Combining Prolotherapy and Platelet-rich Plasma Therapy for Joint Repair in a Case of Anterior Cruciate Ligament Disruption

Platelet-Rich Plasma Prolotherapy for Low Back Pain Caused by Sacroiliac Joint Laxity

A Systematic Review of Prolotherapy for Chronic Musculoskeletal Pain

Prp Therapy in Treating Hypermobile Ehlers-danlos Syndrome