Physical Therapy

Because EDS patients have too much laxity (stretchiness) of ligaments, the primary stabilizers of the skeletal system, toning and strengthening the muscles, the secondary stabilizers, is essential.

The problem lies in the fact that many physical therapists are not familiar with EDS patients and I, personally, have had injuries resulting from therapists that insisted I needed to “stress the joint” not realizing that my bones were grinding together!  So be wary and do your homework… support networks for EDS patients (found here) are invaluable in learning what therapists (and doctors) to see and to avoid.

Programs to consider (do your due diligence) that have been suggested by PT patients:

• Muldowny Physical Therapy 
• https://www.muldowneypt.com/living-life-to-the-fullest-with-ehlers-danlos-syndrome/

This was instrumental (along with prolotherapy and PRP) for taking me from “recliner-ridden” to having mobility to move around, drive, and have a life again.  I personally ordered the hard copy so I can mark in it and take notes, but if you follow the link above, he gives access to getting the ebook, free chapters, and his Facebook Page if you have questions about his protocol.  I still do this protocol to this day, and I can tell a different if I have to take time off due to travel or other issues.

• The Egoscue Method    
• https://egoscue.com/

This is individualize physical therapy that addresses posture imbalances.  I have also worked with Egoscue to help be more “symmetrical.”  You work one-on-one with a therapist who re-evaluates you weekly and updates your exercises as your body changes.