Links to Research on Regenerative Treatments and EDS

Regenerative treatments, such as stem cell therapy, platelet-rich plasma (PRP), and prolotherapy, offer promising approaches for managing Ehlers-Danlos syndrome (EDS). These therapies aim to address the underlying connective tissue issues in EDS patients, helping to improve joint stability, reduce pain, and promote healing. 

As research in this field continues, these treatments show potential to provide better outcomes beyond traditional symptom management. To explore the latest research and findings, check out the links below for more detailed information on regenerative treatments and their impact on EDS.

Patient Support Group Links

EDS Awareness Directory of Local Support Groups https://www.chronicpainpartners.com/

Inspire:  Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders https://www.inspire.com/groups/eds-and-hsd/

The Mighty  https://themighty.com/topic/ehlers-danlos-syndrome/groups  (there are many subgroup topics within this forum)

Patients Like Me https://www.patientslikeme.com/conditions/ehlers-danlos-syndrome/overview

Oh, TWIST  https://ohtwist.com/eds-resources/finding-support

The Pain Community https://paincommunity.org/forums/topic/ehlers-danlos-syndrome-2/

Rare Connect https://www.rareconnect.org/en/community/ehlers-danlos-syndrome

Treatment of Joint Hypermobility Syndrome, Including Ehlers-Danlos Syndrome, with Hackett-Hemwall Prolotherapy https://drbabette.com/wp-content/uploads/2021/08/JOP_vol_3_issue_2_may_2011.pdf#page=22

The Efficacy of Dextrose Prolotherapy Over Placebo for Temporomandibular Joint Hypermobility: A Systematic Review and Meta-Analysis https://onlinelibrary.wiley.com/doi/epdf/10.1111/joor.12698

A Systematic Review of Prolotherapy for Chronic Musculoskeletal Pain https://journals.lww.com/cjsportsmed/abstract/2005/09000/a_systematic_review_of_prolotherapy_for_chronic.17.aspx 

Out of Place: An Osteopathic Approach to Recurrent Shoulder Dislocations in an Ehlers-Danlos Patient https://assets.cureus.com/uploads/poster/pdf/2167/20220425-28073-1fmkic7.pdf

Prolotherapy for Patients with Chronic Musculoskeletal Pain: Systematic Review and Meta-Analysis https://pubmed.ncbi.nlm.nih.gov/16162983/

PRP Therapy in Treating Hypermobile Ehlers-Danlos Syndrome https://jointrehab.com/prp-therapy-in-treating-hypermobile-ehlers-danlos-syndrome

Case Series of Ultrasound-Guided Platelet-Rich Plasma Injections for Sacroiliac Joint Dysfunction https://content.iospress.com/articles/journal-of-back-and-musculoskeletal-rehabilitation/bmr734

Platelet-Rich Plasma Prolotherapy for Low Back Pain Caused by Sacroiliac Joint Laxity https://www.prolotherapy.com/pdf-spine-pelvis/SP-018-Platelet-rich-plasma-prolotherapy-for-low-back-paincaused-by-sacroiliac-joint-laxity-(2010).pdf

Combining Prolotherapy and Platelet-Rich Plasma Therapy for Joint Repair in a Case of Anterior Cruciate Ligament Disruption https://www.proquest.com/openview/fc96d30ba10a8729323736ae78e03383/1

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